Baby's family return to United Kingdom court to seek treatment in US

by Garry Watts July 11, 2017, 0:06
Baby's family return to United Kingdom court to seek treatment in US

Great Ormond Street Hospital applied at the end of last week for a fresh court hearing in the case of the terminally-ill baby, following claims of "new evidence relating to potential treatment for his condition" given by healthcare experts overseas.

Doctors at the Great Ormond Street Hospital in London (where Charlie has lived and received treatment for most of his life), legal professionals, and even the European Court of Human Rights have determined that the baby is now "being exposed to continued pain, suffering and distress", and that the experimental American treatment had "no prospects of success... would offer no benefit".

Mr Justice Francis had ruled in April that ending life-support treatment would be in Charlie's best interests after a High Court trial. Not only that, but they said it would be futile and would prolong Charlie's suffering.

Bambino Gesu, a Vatican-run hospital in Rome, has since offered to treat Gard and sent medical advice suggesting that treatment could be possible. Successive courts ruled in favor of Charlie's British doctors, who said it would be more charitable to allow the child to die.

He called the prayer "one of the most important prayers I have ever prayed in my life" and shared a photo of himself and Charlie's parents on Facebook: "Wonderful update and victory", he captioned the photo. Mr Gard yelled at a barrister representing Great Ormond Street bosses, saying: "When are you going to start telling the truth?"

"Two worldwide hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment", the hospital said in a statement released on Friday.

"Two global hospitals and their researchers have communicated to us as late as the last 24 hours that they have fresh evidence about their proposed experimental treatment", the hospital said in a statement.

British doctors insist experimental therapies offered in the USA won't help the 11 month old.

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Charlie's father said there is no evidence he has "catastrophic brain damage", adding, "He should have had this chance a long time ago".

Prof Modi said decisions on withdrawing life support are not made lightly and don't often reach the courts. "If there is new evidence I will hear it".

The hospital alternatively offered to arrange for the experimental drug to be shipped to Great Ormond Street and advise its staff on administering the drug. "They're all getting stronger", Yates said.

Charlie has a faulty RRM2B gene, which affects the cells responsible for energy production and breathing, meaning he can not move or breathe without a ventilator.

Charlie, who is 11 months old, has a rare and debilitating genetic condition that has no cure.

But he added that Charlie had structural brain damage, and the evidence had been that that could not be reversed.

"We don't see what's dignified about him dying - we think it's dignified that he has a chance at life and if it doesn't work then we'll let him go".

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